My friend Mike called me the other day, and said “I went to your blog, but dude, there’s a lot of stuff on there. Give me the short version of what’s going on.”
From here on out, you should be able to visit this specific post (bookmark it) and when something happens, we will update this post. There is also a link to it on the top right.
UPDATED September 19th.
Our son has two medical issues going on. The first is craniosynostosis, or the premature closure of the bones in the skull. There’s a cool video of his little skull here. We just had surgery to fix that, on September 17th. The surgery and recovery stories are posted here, in chronological order.
The other issue is dysgenesis of the corpus callosum. That is medical-speak for the fact that Benjamin doesn’t have all of his corpus callosum, which is a part of the brain that connects the two halves, and helps with complex or abstract reasoning. Read about that diagnosis here and here. This diagnosis is not fixable, and just means that we will have to closely monitor his development and help treat symptoms if and when they occur.